The Swiss Personalized Health Network initiative (SPHN) was established in 2017 by the government of Switzerland . It is intended to develop personalized medicine and personalized health in Switzerland by harnessing previously segregated health data through establishing a harmonized framework on how to make different data formats interoperable (semantic interoperability) and by building a secure, coordinated IT infrastructure network, across Switzerland.
15-545: SPHN integrates health data from many electronic sources in line with Switzerland’s federalism. SPHN rallies all Swiss stakeholders - from key clinical, research-, research support institutions and patient organizations - around the same table and builds upon (and supports) existing resources in Switzerland. SPHN was commissioned by the Swiss State Secretariat for Education, Research and Innovation and
30-693: A merger of the State Secretariat for Education and Research (SER, formerly part of the Federal Department of Home Affairs ) and the Federal Office for Professional Education and Technology (OPET, formerly part of the Federal Department of Economic Affairs) on 20 December 2012, and it began its activities on 1 January 2013. The entire range of federal activities in education, research and innovation now take place under
45-526: Is a science research support organisation mandated by the Swiss Federal Government . The Swiss National Science Foundation was established under private law by physicist and medical doctor Alexander von Muralt in 1952. The SNSF consists of three main bodies: Foundation Council, National Research Council and Administrative Offices. The Foundation Council is the highest authority and makes strategic decisions. The National Research Council
60-726: Is composed of distinguished researchers who mostly work at Swiss institutions of higher education. They assess research proposals submitted to the SNSF and make funding decisions. The National Research Council comprises up to 100 members and is subdivided into four divisions: Mandated by the federal authorities, the Swiss National Science Foundation supports basic science in all academic disciplines. The National Research Programmes (NRP) and National Centres of Competence in Research (NCCR) are research programmes of
75-646: The Federal Department of Economic Affairs, Education and Research is the federal government's specialised agency for national and international matters concerning education, research and innovation policy. The SERI has 280 members of staff and controls an annual budget of around CHF 4.5 billion. The head of the SERI is State Secretary Martina Hirayama. Numerous public and private stakeholders contribute to Switzerland’s federally structured system of education, research and innovation (ERI). They are responsible for performance, funding, legislation and strategic management. As
90-717: The Federal Office of Public Health . Both the Swiss Academy of Medical Sciences ( SAMS ) and the SIB Swiss Institute of Bioinformatics ( SIB ) are responsible for the implementation of the mandate. A total of CHF 68 million was allocated to the initiative for the period 2017-2020. The ethical, legal and social implications of personalized medicine are central to SPHN. Therefore, the SPHN Ethical, Legal and Societal Implications Advisory Group (ELSIag)
105-467: The Confederation at national and international forums. In addition, it is the national contact point for the recognition of foreign VET, PET and UAS qualifications, handling coordination between the various agencies involved. It is responsible for recognition of baccalaureates issued by cantonal baccalaureate schools. Finally, it works to ensure the comparability of VET and PET qualifications at both
120-535: The Confederation’s specialised agency for the ERI system, the SERI has the following remit: SERI pursues its remit in consultation with the cantons, professional organisations, higher education institutions and bodies as well as with other stakeholders involved in the promotion of research and innovation. SERI is responsible for relationships with national and international authorities and institutions. It also represents
135-544: The EPD and SPHN both deal will health data, the EPD focuses on care data whereas SPHN focuses on research data. SPHN and eHealth Suisse collaborate on semantics and interoperability. Although the federal law on the electronic patient dossier (EPD) was agreed on in 2015, it only gave access to those directly involved in the patient's treatment. State Secretariat for Education, Research and Innovation The State Secretariat for Education, Research and Innovation (SERI) within
150-619: The EU Framework Programmes. SwissCore is Switzerland's Brussels-based liaison and information office for cooperation in ERI and is funded by the SERI, the Swiss National Science Foundation and Innosuisse. Swissuniversities coordinates the Swiss activities of EURAXESS, a European initiative that supports researcher mobility and career development, which are funded by SERI. SERI was formed from
165-469: The SNSF. Mandated by the Federal Council, NRPs generate scientific knowledge aimed at solving pressing problems. They generally run for up to five years and have an overall budget of eight to twelve million Swiss francs . Since 1975, the SNSF has launched over 69 NRPs. NCCRs aim to strengthen research structures in Switzerland. Each NCCR is based at an institution of higher education and consists of
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#1732790647919180-437: The auspices of the broader-based Federal Department of Economic Affairs, Education and Research (EAER) . Swiss National Science Foundation The Swiss National Science Foundation ( SNSF , German: Schweizerischer Nationalfonds zur Förderung der wissenschaftlichen Forschung , SNF; French: Fonds national suisse de la recherche scientifique , FNS; Italian: Fondo nazionale svizzero per la ricerca scientifica )
195-469: The five Swiss University Hospitals. SPHN started with the records held by University Hospitals. Later the cantonal hospitals and clinics will be included. It will have to cope with both structured and unstructured data in three national languages and English. The Electronic Patient Dossier (EPD) is a mandate of eHealth Suisse, a competency and coordination office of the Swiss Government. Although
210-652: The national and international level. The SERI is also responsible for the Swiss Science Council (SSC), which is administratively attached to it. SERI has an annual budget for education, research and innovation of around CHF 4.5 billion. The SERI represents Switzerland's interests in the EU Framework Programmes for Research and Innovation. It is supported in this task by three implementation partners: Euresearch , SwissCore and Swissuniversities . Euresearch receives funding from SERI to support Swiss-based researchers and innovators regarding participation in
225-568: Was setup and tasked to address key ethical, legal and societal challenges that are relevant to the SPHN’s activities. SPHN focuses much of its efforts on training and awareness related to Data Privacy and IT Security to protect the patients’ privacy when performing biomedical research on human data. To enable the implementation of SPHN’s core infrastructure aiming to make health-related data interoperable and shareable, SPHN funded ‘Infrastructure implementation projects’ through collaboration agreements with
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