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Motor Neurone Disease Association

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The Motor Neurone Disease Association ( MND Association ) focuses on improving access to care, research and campaigning for those people living with or affected by motor neurone disease (MND) in England , Wales and Northern Ireland . MND is also known as amyotrophic lateral sclerosis (ALS) or, in the United States, Lou Gehrig's disease.

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37-479: The Association is the only national charity in England, Wales and Northern Ireland that funds and promotes global research into the disease and provides support for people affected by MND. The MND Association funds and promotes research to understand what causes MND, how to diagnose it and, most importantly, how to effectively treat it so that it no longer devastates lives. It does this by: The Association organises

74-418: A health care professional to share their information with another healthcare professional, even one giving them care—but are advised, where appropriate, about the dangers of this course of action, due to possible drug interactions. However, in a few limited instances, a healthcare worker can share personal information without consent if it is in the public interest. These instances are set out in guidance from

111-572: A client was about to commit murder or assault. The Supreme Court of California promptly amended the California Rules of Professional Conduct to conform to the new exception in the revised statute. Recent legislation in the UK curtails the confidentiality professionals like lawyers and accountants can maintain at the expense of the state. Accountants, for example, are required to disclose to the state any suspicions of fraudulent accounting and, even,

148-431: A client. The duty of confidentiality is much broader than the attorney–client evidentiary privilege , which only covers communications between the attorney and the client. Both the privilege and the duty serve the purpose of encouraging clients to speak frankly about their cases. This way, lawyers can carry out their duty to provide clients with zealous representation. Otherwise, the opposing side may be able to surprise

185-415: A patient's consent to share personal confidential information is assumed. When personal confidential information is shared between healthcare workers, consent is taken as implied. If a patient doesn't want a healthcare worker to share confidential health information, they need to make this clear and discuss the matter with healthcare staff. Patients have the right, in most situations, to refuse permission for

222-467: A subject discipline, Health and Social Care (H&SC) combines elements of sociology, biology, nutrition, law, and ethics. Typically, students of Health and Social Care will have a work placement alongside their academic studies; such a placement may take place in a nursery, residential home, hospital, or other caring establishment. Others may take a health and social care course as a route to further qualifications hoping that it will lead to employment within

259-488: Is about to, provide the patient directly with healthcare to make sure they get the best possible treatment. They only share information that is relevant to their care in that instance, and with consent. There are two ways to give consent: explicit consent or implied consent . Explicit consent is when a patient clearly communicates to a healthcare worker, verbally or in writing or in some other way, that relevant confidential information can be shared. Implied consent means that

296-694: Is based in law, in the NHS Constitution, and in key NHS rules and procedures. It is also outlined in every NHS employee's contract of employment and in professional standards set by regulatory bodies. The National AIDS Trust's Confidentiality in the NHS: Your Information, Your Rights outlines these rights. All registered healthcare professionals must abide by these standards and if they are found to have breached confidentiality, they can face disciplinary action. A healthcare worker shares confidential information with someone else who is, or

333-471: Is determined by the use of negative and positive freedom. Some legal jurisdictions recognise a category of commercial confidentiality whereby a business may withhold information on the basis of perceived harm to "commercial interests". For example, Coca-Cola 's main syrup formula remains a trade secret . Confidentiality agreements that "seal" litigation settlements are not uncommon, but this can leave regulators and society ignorant of public hazards. In

370-545: Is the Health and Social Care Information Centre HSCIC . NHS Scotland has a Health and Social Care Management Board which meets fortnightly. The term can also refer to a range of vocational and academic courses which can be taken at various academic and vocational levels from GNVQ , A-Level , S/NVQ, to degrees. In Canada and the United-States, health and social care is frequently referred to as " Human Services " As

407-469: Is to succeed. First, the information itself, in the words of Lord Greene, M.R. in the Saltman case on page 215, must "have the necessary quality of confidence about it." Secondly, that information must have been imparted in circumstances importing an obligation of confidence. Thirdly, there must be an unauthorised use of that information to the detriment of the party communicating it. The 1896 case featuring

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444-452: Is vast, and will vary depending upon the level at which it is being studied, and the individual qualification. Most students of H&SC will cover areas such as: The biological aspect of H&SC is vital: with many careers it will form the most important area of their knowledge. Students need to be aware of how people grow and develop physically, and they may also be required to study a range of illnesses and treatments. This may include

481-519: The good clinical practice inspections in accordance with applicable national and international requirements. A typical patient declaration might read: I have been informed of the benefit that I gain from the protection and the rights granted by the European Union Data Protection Directive and other national laws on the protection of my personal data. I agree that the representatives of the sponsor or possibly

518-510: The therapeutic alliance , as it promotes an environment of trust. There are important exceptions to confidentiality, namely where it conflicts with the clinician's duty to warn or duty to protect . This includes instances of suicidal behavior or homicidal plans, child abuse , elder abuse and dependent adult abuse . Information shared by a client with a therapist is considered as privileged communication , however in certain cases and based on certain provinces and states they are negated, it

555-571: The General Medical Council, which is the regulatory body for doctors. Sometimes the healthcare worker has to provide the information – if required by law or in response to a court order. The National AIDS Trust has written a guide for people living with HIV to confidentiality in the NHS. The ethical principle of confidentiality requires that information shared by a client with a therapist isn't shared without consent, and that

592-527: The International Symposium on ALS/MND, an annual event which brings together leading international researchers and health and social care professionals to present and debate innovations in their fields. The Association funds research that includes animal testing. The Association has a campaigns network that helps shape a better future for people with neurological conditions such as MND. It does this by: Current patrons and ambassadors for

629-492: The New Jersey and Virginia Rules of Professional Conduct, Rule 1.6. In some jurisdictions, the lawyer must try to convince the client to conform his or her conduct to the boundaries of the law before disclosing any otherwise confidential information. These exceptions generally do not cover crimes that have already occurred, even in extreme cases where murderers have confessed the location of missing bodies to their lawyers but

666-501: The U.S. state of Washington, for example, journalists discovered that about two dozen medical malpractice cases had been improperly sealed by judges, leading to improperly weak discipline by the state Department of Health. In the 1990s and early 2000s, the Catholic sexual abuse scandal involved a number of confidentiality agreements with victims. Some states have passed laws that limit confidentiality. For example, in 1990 Florida passed

703-579: The client may kill or seriously injure someone, may cause substantial injury to the financial interest or property of another, or is using (or seeking to use) the lawyer's services to perpetrate a crime or fraud. In such situations the lawyer has the discretion, but not the obligation, to disclose information designed to prevent the planned action. Most states have a version of this discretionary disclosure rule under Rules of Professional Conduct, Rule 1.6 (or its equivalent). A few jurisdictions have made this traditionally discretionary duty mandatory. For example, see

740-603: The doctor. Confidentiality is commonly applied to conversations between doctors and patients. Legal protections prevent physicians from revealing certain discussions with patients, even under oath in court. This physician-patient privilege only applies to secrets shared between physician and patient during the course of providing medical care. The rule dates back to at least the Hippocratic Oath , which reads in part: Whatever, in connection with my professional service, or not in connection with it, I see or hear, in

777-440: The exercise of personal choice are all ethical dilemmas encountered and processed on a daily basis in the context of social care. Ethics is also the process that health services follow in order to explore, justify and effect change - for instance if a new procedure, drug or surgical technique is being developed it must at some point be used with patients. The examination of potential positive and negative effects or outcomes, and

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814-399: The health authorities can have access to my medical records. My participation in the study will be treated as confidential. I will not be referred to by my name in any report of the study. My identity will not be disclosed to any person, except for the purposes described above and in the event of a medical emergency or if required by the law. My data will be processed electronically to determine

851-529: The knowledge of the patient's parents. Many states in the U.S. have laws governing parental notification in underage abortion. Confidentiality can be protected in medical research via certificates of confidentiality . Due to the EU Directive 2001/20/EC , inspectors appointed by the Member States have to maintain confidentiality whenever they gain access to confidential information as a result of

888-424: The lawyer in court with something he did not know about his client, which may weaken the client's position. Also, a distrustful client might hide a relevant fact he thinks is incriminating, but that a skilled lawyer could turn to the client's advantage (for example, by raising affirmative defenses like self-defense). However, most jurisdictions have exceptions for situations where the lawyer has reason to believe that

925-454: The legitimate use of tax saving schemes if those schemes are not already known to the tax authorities. The "three traditional requirements of the cause of action for breach of confidence" were identified by Megarry J in Coco v A N Clark (Engineers) Ltd (1968) in the following terms: In my judgment, three elements are normally required if, apart from contract, a case of breach of confidence

962-567: The life of men, which ought not to be spoken of abroad, I will not divulge, as reckoning that all such should be kept secret. Traditionally, medical ethics has viewed the duty of confidentiality as a relatively non-negotiable tenet of medical practice. Confidentiality is standard in the United States by HIPAA laws, specifically the Privacy Rule, and various state laws, some more rigorous than HIPAA. However, numerous exceptions to

999-429: The organisation include: Health and Social Care Health and Social Care (often abbreviated to HSC or H&SC ) is a term that relates to services that are available from health and social care providers in the UK. This is a generic term used to refer to the whole of the healthcare provision infrastructure, and private sector. The English national provider of information about health and social care

1036-614: The outcome of this study, and to provide it to the health authorities. My data may be transferred to other countries (such as the USA). For these purposes the sponsor has to protect my personal information even in countries whose data privacy laws are less strict than those of this country. In the United Kingdom information about an individual's HIV status is kept confidential within the National Health Service . This

1073-406: The people receiving care get the most out of it as they possibly can. Confidentiality Confidentiality involves a set of rules or a promise usually executed through confidentiality agreements that limits the access to or places restrictions on the distribution of certain types of information . By law, lawyers are often required to keep confidential anything on the representation of

1110-710: The police are still looking for those bodies. The U.S. Supreme Court and many state supreme courts have affirmed the right of a lawyer to withhold information in such situations. Otherwise, it would be impossible for any criminal defendant to obtain a zealous defense. California is famous for having one of the strongest duties of confidentiality in the world; its lawyers must protect client confidences at "every peril to himself [or herself]" under former California Business and Professions Code section 6068(e). Until an amendment in 2004 (which turned subsection (e) into subsection (e)(1) and added subsection (e)(2) to section 6068), California lawyers were not even permitted to disclose that

1147-479: The provision of appropriate, accessible information about these to the patient to enable informed consent , is an example of applied ethics . Ideally, care workers need to make care environments not merely "tolerable", but enjoyable and fulfilling for the clients; this might involve carrying out social and educational activities with those in care. Students of H&SC will need to learn about how to run games, activities, reading groups, excursions and so on, so that

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1184-427: The royal accoucheur Dr William Smoult Playfair showed the difference between lay and medical views. Playfair was consulted by Linda Kitson; he ascertained that she had been pregnant while separated from her husband. He informed his wife, a relative of Kitson's, in order that she protect herself and their daughters from moral contagion. Kitson sued, and the case gained public notoriety, with huge damages awarded against

1221-489: The rules have been carved out over the years. For example, many American states require physicians to report gunshot wounds to the police and impaired drivers to the Department of Motor Vehicles. Confidentiality is also challenged in cases involving the diagnosis of a sexually transmitted disease in a patient who refuses to reveal the diagnosis to a spouse, and in the termination of a pregnancy in an underage patient, without

1258-461: The sector. Depending on their qualification, students may start off as care assistants and develop care pathways to become doctors , nurses , social workers , physiotherapists , counsellors , psychotherapists , paramedics or a range of other related occupations. H&SC can be studied in schools and colleges from Key Stage 4 / GCSE Level (age 14–16), colleges and can also be studied in some universities. The subject content of H&SC

1295-402: The sharing of information would be guided by ETHIC Model: Examining professional values, after thinking about ethical standards of the certifying association, hypothesize about different courses of action and possible consequences, identifying how it and to whom will it be beneficial per professional standards, and after consulting with supervisor and colleagues. Confidentiality principle bolsters

1332-522: The study of public health, and public health campaigns such as the effects of smoking , poor diet and lack of exercise . Nutrition may form an integral part of some H&SC courses, especially in situations where carers will be primarily responsible for creating and implementing diets for care service users. Students require a good grounding in the legal aspects of what is required of care practitioners, and will need to have up-to-date knowledge of developments in social policy , as well as knowledge of

1369-501: The various laws regarding rights, discrimination , abuse , welfare and so on. Ethics as applied to the medical and social care fields is a broad and important field of the study of Health and Social Care. In the workplace, professional caregivers need to be able to support individuals who feel that they have been or are being treated unfairly, or who do not have access to appropriate care services for some reason. Questions of confidentiality , privacy, risk taking and generally

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