Misplaced Pages

#840159

33-687: The Biotechnology Heritage Award recognizes individuals who have made significant contributions to the development of biotechnology through discovery, innovation, and public understanding. It is presented annually at the Biotechnology Innovation Organization (BIO) Annual International Convention by the Biotechnology Innovation Organization (BIO, formerly the Biotechnology Industry Organization) and

66-724: A Navy Reserve unit at the United States Special Operations Command. Crowley is a member of the 2009 class of Henry Crown Fellows at the Aspen Institute. In the spring of 2008, Crowley was considered as a potential candidate for the Republican nomination for United States Senate in New Jersey to oppose incumbent Democrat Frank Lautenberg . He did not run due to family and military obligations. Crowley served from 2008 to 2009 as

99-520: A more efficient and predictable regulatory process for new food and drug products. In June 2013 BIO partnered with the Coalition of Small Business Innovators to lobby the U.S. government to modernize the U.S. tax code "to recognize and promote small business innovation as fundamental to the long-term growth of the U.S. economy". It is a member of The Alliance to Feed the Future, an umbrella network,

132-483: A replacement. Crowley was mentioned as a potential replacement, along with Thomas Kean , Tom Kean, Jr. , Kim Guadagno , Jon Bramnick , and Joe Kyrillos ; ultimately, Christie selected Jeffrey Chiesa for the post. Crowley is active in a number of social service and philanthropic efforts. In 2009, he was named to the national board of directors to the Make-A-Wish Foundation of America and became

165-495: A representative voice for the smaller companies among BIO's membership. After Congressman Greenwood's 15 years of service, the BIO board announced scientist and former FDA regulator Michelle McMurry-Heath would become president and CEO as of 1 June 2020 . McMurry-Heath was placed on leave sometime prior to October 6, 2022, reportedly as a result of disagreements with a small but influential group of board members who wanted

198-672: Is a composite character based primarily on Dr. William Canfield and inspired as well by other doctors Crowley worked with. The film premiered at the University of Notre Dame a week before the official release, and the family attended the red carpet premier in Manhattan. The film was featured at the Re:Image Film Festival held by the Diocese of Trenton in 2010. Crowley attended the event to speak about his family and

231-641: Is for Fabry disease . The company's Fabry drug was approved for use in Europe in 2016. The company also has a drug in late stage clinical development for epidermolysis bullosa (EB). Crowley also served in the United States Navy Reserve as an intelligence officer. He completed a six-month tour of active duty at the Center for Naval Intelligence in Virginia in 2007. He was assigned to

264-493: Is given bi-weekly. The enzyme replacement therapy reduced the size of the children's hearts and improved their muscle strength for a time. The acquisition of Novazyme by Genzyme, and Crowley's fight to cure Pompe's Disease, was documented in the Harvard Business School Case Study, Novazyme: A Father's Love. Crowley left Genzyme to ensure that his children would qualify for a drug developed by

297-686: The Cannon House Caucus Room on the subject of biotechnology medicines and the protection of patient safety. In July 2010, he testified before the Senate Committee on Health, Education, Labor and Pensions about the state of pediatric rare diseases research. He is widely credited with leading the effort in 2010 to form the bi-partisan Congressional Caucus on Rare Diseases in Washington, DC. In April 2011, Crowley stepped down from his CEO position at Amicus. At that time, it

330-521: The Indianapolis -based law firm of Bingham Summers Welsh & Spilman. He went on to receive an M.B.A. degree from Harvard Business School in 1997 and then worked for a management consulting firm in San Francisco . In 1998, two of Crowley's children, Megan and Patrick, were diagnosed with a severe neuromuscular disorder glycogen storage disease type II , also called Pompe disease. In

363-656: The Internal Revenue Code to provide an exception from the passive loss rules for investments in high-technology research small business pass-through entities , to include vaccines against seasonal influenza within the definition of taxable vaccines, and to extend, expand, and improve the qualifying therapeutic discovery project program that first became law in 2010. Examples of its public lobbying efforts, include support for development of biofuels such as those produced from algae , genetically modified crops , strong intellectual property rights, and for

SECTION 10

#1732793088841

396-749: The Science History Institute (formerly the Chemical Heritage Foundation). The purpose of the award is "to encourage emulation, inspire achievement, and promote public understanding of modern science, industry, and economics". The award is given yearly and was first presented in 1999. Biotechnology Innovation Organization BIO holds its annual international conference each year in the United States . This conference provides networking, business development and partnering activities that are essential to

429-523: The University of Florida , and University of Oklahoma that were all working on Pompe, but were not communicating. In March 2000, Crowley left Bristol-Myers Squibb and partnered with William Canfield to start Novazyme Pharmaceuticals, a biotechnology research company located in Oklahoma City . Crowley became the company's CEO. In 2001, Novazyme was acquired by Genzyme Corporation , then

462-458: The Biotechnology Innovation Organization (BIO) and the Science History Institute (formerly the Chemical Heritage Foundation), recognizes individuals who have made significant contributions to the development of biotechnology through discovery, innovation, and public understanding. John Crowley (biotech executive) John Francis Crowley (born April 7, 1967) is the President and CEO of

495-416: The Biotechnology Innovation Organization (BIO), the world’s largest biotechnology advocacy organization. He served as the chairman and CEO of Amicus Therapeutics . He co-founded Novazyme Pharmaceuticals with William Canfield , which was later acquired by Genzyme Corporation , and founded Orexigen Therapeutics. In 2006, he was profiled in the book The Cure: How a Father Raised $ 100 Million – And Bucked

528-626: The COVID-19 pandemic. Crowley was profiled in The Wall Street Journal by Pulitzer Prize -winning journalist Geeta Anand . Anand expanded the profile of Crowley into a book published in 2006, The Cure: How a Father Raised $ 100 Million – And Bucked the Medical Establishment ;– In a Quest to Save His Children ( ISBN   978-0060734398 ). Harrison Ford and Double Feature films optioned

561-653: The Honorary Chairman of Building the New Majority, a Continuing Political Committee, the New Jersey state version of a Political Action Committee , that seeks "..to identify, develop and empower local candidates from township committee to the state legislature". He has been involved in championing numerous public policy causes, most notably in the rare disease and healthcare space. On July 22, 2008, he spoke before several hundred Congressional staffers in

594-408: The Medical Establishment – In a Quest to Save His Children by Geeta Anand . In 2010, Crowley released his memoir, Chasing Miracles: The Crowley Family Journey of Strength, Hope, and Joy. Crowley and his family were the inspiration for the movie Extraordinary Measures starring Harrison Ford and Brendan Fraser in 2010. Crowley was named CEO of the Biotechnology Innovation Organization ,

627-579: The Year"; the "2007 E&Y New Jersey Entrepreneur of the Year". In 2011, Crowley and his wife, Aileen, were given the Family Exemplar Award for their work toward finding treatments for rare diseases by the University of Notre Dame. He received an honorary doctorate degree from the University of Notre Dame and was commencement speaker for the class of 2020 graduation, held in May 2022 as a result of

660-463: The biotechnology industry, in which developing products take considerable time and resources and regulatory risks are high. In 2021, BIO shifted its in-person meetings to virtual, due to restrictions and difficulties arising from the COVID-19 pandemic. In 2018, BIO spent $ 9.87 million on lobbying the government of the United States. Past issues that BIO has lobbied on included the amending

693-701: The class of 1985. Crowley attended the United States Naval Academy in Annapolis, Maryland from 1986 to 1987. He went on to earn a B.S. in Foreign Service from Georgetown University . He entered the University of Notre Dame Law School in 1989 and married his wife Aileen in 1990. After receiving his J.D. degree from Notre Dame in 1992, he worked as a litigation associate in the Health Care Practice Group of

SECTION 20

#1732793088841

726-414: The commencement address at Penn State University, Lehigh Valley. He is a Henry Crown fellow of the Aspen Institute. He has received numerous awards and recognitions for his business leadership and philanthropic efforts, including: New Jersey Biotechnology Industry Organization's 2011 "Dr. Sol J. Barer Award for Vision, Innovation and Leadership"; the 2009 Make A Wish Foundation of New Jersey's "Humanitarian of

759-526: The company. He then became founding president and CEO of Orexigen Therapeutics in 2003. In 2004, he became a director at Amicus Therapeutics, based in Cranbury, New Jersey , and in January 2005, he was named the president and CEO of the company. Amicus works to develop treatments for rare, devastating genetic disorders. The company has a Pompe treatment in development, as well as Galafold ( migalastat ), which

792-455: The face of the children's deteriorating health, the family moved to Princeton, New Jersey to be close to doctors specializing in the disease. Crowley got a job at Bristol-Myers Squibb , immersing himself in health research. He established a foundation to raise money for Pompe awareness and the family worked with non-profit organizations to fund Pompe research. Crowley found that there were researchers in Europe as well as at Duke University ,

825-607: The largest Biotechnology advocacy organization in the world, in 2023. Crowley was raised in Englewood, New Jersey , the son of an Englewood police officer who died in an accident on duty when Crowley was eight years old. His family has Irish and Italian Catholic roots. Crowley's grandfather, John, was a first-generation immigrant from County Cork. His mother worked as a secretary and a waitress. Crowley attended Bergen Catholic High School in Oradell, New Jersey , graduating with

858-887: The mission of which is to "raise awareness and improve understanding of the benefits & necessity of modern food production and technology in order to meet global demand". The "Right Mix Matters" campaign launched in 2019 targets diversity within biopharmaceutical company leadership, including ongoing assessment of diversity measures (gender, race, ethnicity, sexual orientation) and the provision of online tools aimed at assisting companies to achieve target diversity goals. BIOs members include companies that make pharmaceutical drugs , biofuels , industrial enzymes , and genetically modified crops , as well as healthcare facilities that participate in clinical trials and biopharmaceutical research. As of 2016, it represents 1,100 biotech companies in all 50 U.S. states, which employ 1.61 million Americans and support an additional 3.4 million jobs. BIO

891-556: The national chairman of the organization in 2014. In 2007, Crowley received the Edward Murphy Award from the University of Notre Dame , given to distinguished lawyers in private practice who have distinguished themselves in the profession of law. Crowley was awarded an Honorary Doctor of Science from Neumann University in Aston, Pennsylvania where he also delivered the commencement address in 2009. In 2010, he delivered

924-440: The organization to use its clout to advance social issues not directly connected to its industry interests. Additionally, questions had been raised by some board members about her performance and management style. Heath resigned effective October 11, 2022, with GlycoMimetics co-founder and former CEO Rachel King tapped to serve as interim CEO of the organization. In 2023, John Crowley , Executive Chairman of Amicus Therapeutics ,

957-557: The rights to produce a film inspired by Anand's book and the Crowley family. In April 2009, CBS Films began filming this major motion picture about the Crowley family's quest to save their children's lives. The film, titled Extraordinary Measures was released nationwide on January 22, 2010. Directed by Tom Vaughan , Extraordinary Measures stars Brendan Fraser as John Crowley and Keri Russell as Aileen Crowley, and also executive producer Harrison Ford as "Dr. Robert Stonehill" who

990-495: The world's third-largest biotechnology company. Crowley, who became senior vice president, was in charge of Genzyme's global Pompe program, the largest R&D effort in the company's history, from September 2001 until December 2002. In January 2003, Megan and Patrick Crowley received the enzyme replacement therapy for Pompe disease developed by Genzyme at St. Peters Hospital in New Brunswick. The therapy, called Lumizyme ,

1023-446: Was announced as BIO's next CEO. Crowley has a background in rare diseases and is credited with working on a drug to save his children's and all individuals with Pompe disease 's hearts. His work was the subject of the movie Extraordinary Measures which starred Brendan Fraser and Harrison Ford . The Biotechnology Heritage Award , presented annually at the Biotechnology Innovation Organization (BIO) Annual International Convention by

Biotechnology Heritage Award - Misplaced Pages Continue

1056-525: Was founded in 1993 in Washington, D.C. , and Carl B. Feldbaum was the president from BIO's founding until he retired in 2004. He was succeeded by James C. Greenwood who held the offices of president and CEO from 2005 to 2020. The association has a 120-member board, consisting of a diverse mix of company executives based upon size, geography, and pharmaceutical focus. The board's executive committee consists of 21 members, purposefully designed to ensure

1089-523: Was speculated that Crowley would run for the Senate as the Republican candidate against Sen. Robert Menendez (D-NJ) in 2012. Crowley did not run for Senate and after completing temporary active duty with the U.S. Navy Reserve, he returned to his position as CEO of Amicus in August 2011. On June 3, 2013, Senator Frank Lautenberg died, meaning that Governor Chris Christie possessed the ability to appoint

#840159